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Survey Results Published! Chronic Lyme Patients Suffer Poor Quality of Life and High Rates of Disability and Unemployment

0 2 years ago

LDo’s most recent survey of over 3,000 patients with chronic Lyme disease was published today by PeerJ. Although the Centers for Disease Control (CDC) recently increased the number of Lyme disease cases in the US from 30,000 to 300,000, little is known about how chronic Lyme disease affects patients. We decided it was time to ask them. This post will provide an overview of the findings and future blogs will focus on other findings regarding coinfection rates, rashes, disability, symptoms and other topics. The study was a joint effort of LymeDisease.Org and Prof. Jennifer Mankoff at Carnegie Mellon University.

Chronic Lyme disease is associated with a poorer quality of life than most other chronic illnesses, according to a newly published comprehensive patient survey. Patients with chronic Lyme disease have high disability and unemployment rates and, compared to the general population, are five times more likely to visit healthcare providers and twice as likely to be seen in emergency rooms.

The CDC estimates that more than 300,000 people contract Lyme disease every year in the United States. Approximately, 36% of patients diagnosed and treated early remain ill after a short-term course of antibiotics. The survey used standard questions developed by the CDC regarding health related quality of life.

The study found that chronic Lyme disease is associated with a worse quality of life than most other chronic illnesses, including congestive heart failure, diabetes, multiple sclerosis and arthritis. Fair or poor health was reported by 73% of patients with chronic Lyme disease. In comparison, only 16% of those in the general population report fair or poor health.


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